The open-access paper, “System change in practice: A report from the EHC Think Tank workstreams on Registries and Patient Agency”, reporting on outcomes and learnings from the Registries and Patient Agency workstreams, is now published in The Journal of Haemophilia Practice.

We’re thrilled to share an outcome of our 2023 Innovation Summit where the EHC Think Tank Patient Agency workstream developed the Guidebook on Patient Agency – Challenges & Interventions.

The second paper from the workstreams on Access Equity and Future Care Pathways in which workstream members identified a ‘guiding star’ determining the direction of ongoing focus, defined achievable ‘near star’ milestones, and enablers and constraints to achieving these is now published.

The first paper from the workstream on future care pathways in which workstream members identify four challenges to be prioritised for future discussions about shaping care pathways is now published. […]

The first paper from the workstream on access equity in which workstream members identify three challenges to be prioritised for future discussions about potential interventions is now published. Participants shared […]

The first-ever EHC Think Tank Innovation Summit is in the books! 

We are delighted to invite you to the virtual event “When the Think Tank thinks” to give you an opportunity to learn more about how the Think Tank operates, be inspired and meet new and old faces alike.

At the second series of workshops for the EHC Think Tank Workstreams on Registries, Hub and Spoke Model and Patient Agency, stakeholder participants worked towards consensus on addressing challenges to […]

The EHC Think Tank published its 2022 report detailing all of its activities. You can read the report here.