President, Всероссийское общество гемофилии (Russia)

Yuri Zhulyov


Yuri is the President of the Russian Haemophilia Society, a position he has held since 2000. He has helped establish more than 60 regional chapters around Russia to increase awareness and quality of care across the country. In 2005 he led a campaign that ensured haemophilia receives federal treatment support.  

From 2000-2004 Yuri served as Steering Committee member of the EHC. Currently, he is the co-chair of the Russian Union of Patients Public Societies and Deputy Chairman of the Public Council of the Ministry of Health of the Russian Federation, as well as being engaged in several other councils and working groups which focus on public health, patients’ rights and disability. Yuri holds a Law Degree from Moscow State Law University.  

Already recipient of numerous achievement awards in the fields of advocacy and volunteering – including for his activity in Eastern European countries –  in 2020 Yuri received the WFH’s ‘President’s Award,’its highest honour.