President, EHC Steering Committee (IRE)

Declan Noone

Biography

Declan is President of the European Haemophilia Consortium (EHC). Mr Noone has extensive experience as a patient advocate at the national, European and international level. For eight years, he worked with the Irish Haemophilia Society (IHS) as Data and Public Policy Specialist. His main responsibilities included membership of the national tender board for the purchase of treatment products for haemophilia and other related conditions. He also worked in the area of Hepatitis C and access to treatments. Before being elected President, he worked with the EHC as Project Consultant on the PARTNERS programme, an initiative to raise access to treatment in countries with low standard of care. During his time with EHC he also coordinated projects on data collection and novel therapies. 

Declan has been a member of the WFH Board of Directors and a member of the Educational Materials-, Data and Demographics- and Safety and Supply Committees. He has authored and co-authored numerous papers on quality of life in people with bleeding disorders, access to treatment and care in Europe, and WFH and EHC monographs. He has degrees in Medical Engineering and Health Economics.